I still have episodes of silent reflux off and on.
It is not as bad as it has been in years, and most people have it a lot worse than I do. I am thankful I am better.
Since I suffered from LERD, I am very passionate about spreading awareness of the disease. Most doctors know about GERD, but very few have any idea about silent reflux.
I guess it makes since, the disease has a very poorly understood pathology and its symptoms mimic any other disease. Just look at these symptoms:
- Coughing, hoarseness, tachycardia after eating, esophageal spasms, post-nasal drip, sore throat, lump in the throat feeling (globus pharyngitis,) hoarseness, dry mouth, bad taste in mouth, bad breath, loss of smell and nose function, ear infections, hearing problems, and asthma.
At my worst, my throat was sore all the time, I had trouble breathing, and could barely speak. Some people even have to be hospitalized because their throat closes from the reflux.
My reflux is not that bad anymore. Transnasal endoscopy shows that my larynx barely has any inflammation, and my esophagus looks fine. I very rarely clear my throat anymore, but I still become hoarse if I talk for a long time.
I believe I have permanently lost most of my sense of smell from it. I have no clue if the tinnitus I suffer from on occasion is from it or ear damage from listening to music too loud from an SOD2 mutation caused by taking Accutane as a teenager.
So what is the cause of my silent reflux?
I have some speculation that it is from an implanted hernia mesh that was put in when I had abdominal surgery as a teenager. Part of it has embedded itself into the top part of my stomach and LES. I believe it causes LES and UES weakness by causing excessive unequal pressure creating an imbalance. I believe this is why I can never achieve permanent relief without surgery, which may damage my stomach.
I am glad however that I have helped many people with this condition through coaching though. I would never wish for anyone to suffer from this debilitating condition. Years ago it made my life hell.
So what worked for me?
- Low acid diet
- Zinc carnosine
- Alkaline water
- Low FODMAP on occasion
- Increasing thyroid function
- Magnesium supplementation
- Treat my Tinea versicolor and yeast overload
- Stress reduction
I will start blogging on silent reflux more to try to help as many people as I can and explain what I believe may be the true pathology of the disease. If anyone is suffering from it I am here for you.